Showing posts with label TTTS. Show all posts
Showing posts with label TTTS. Show all posts

Thursday, August 12, 2010

14 Days Later...



It's been quite a busy summer. I know, everyone's summer is busy. But mine hasn't been this busy, in a fun way, in 8 years. The boys having their trachs removed has opened a lot of doors for opportunity. Swimming (that's Milo in the pool above), beach, boardwalk, Pop & Grammy's house, the mall, the outlets, the supermarket, the park- when the air quality is safe. I've never taken all 4 kids anywhere by myself.
Now, I can take them a few places by myself as long as I know I'm going somewhere where I have help and an extra set of eyes. Such as my parents' house. Lije will dart for the nearest bookcase and start flipping pages at sonic speed, tearing a few innocent bystanders out. This is fine as long as it's not a book you actually want all the pages to.
Milo, will run to the closest television. He'll already have a movie in mind and sign it an inch from your face until you get your arse up and put that particular movie in the player. That won't last long as he really only enjoys the opening scene and the closing credits of mostly every film. But oddly enough he'll watch any movie that's on HBO at the moment, even if he has the DVD, it's more exciting to watch it spontaneously. And I totally get that. As a kid I remember freaking out on hearing the first note of any Duran Duran or Culture Club song that came on the radio. It sounded so much better than when playing it purposefully on my cassette player.

So it happens to be raining today, all day supposedly. Which brings me back here to blog on my sad, lonely blog with my 5 followers. Hi followers! I know you guys think I suck at blogging. It's ok, you all know I hate winter with a fiery fervor. I'll be seeking the comfort of my nylon, synthetic something-or-other ergonomically-correct computer chair from the first day of the last leaf falling. I only come out when there's leaves on the trees, is what I'm trying to say.



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Up there's a pic of Lije eating lunch apres swimming. I really need to get my hands on that water-proof camera we apparently own. Do they make those in digital nowadays? I need one of those. I *love* seeing my baby boys in the water, up to their chins! I can't tell you how long I've dreamed of this day.

I think there's only a few days left of school for the summer session. I'll be planning the Twinkies' 8th birthday party. While I'm not much of a party planner these days, I'd really like to do something nice for their first birthday sans tracheostomy. I'm throwing around having a party on the beach but it makes me too nervous with the unpredictable weather in the beginning of September, our northeaster season.

Any ideas? I am not into having it at a "place". Such as a Chuck E. Cheese's or other petri dishes. I'd like to keep it ungimmicky. It really just ends up being my brothers' families and their teenage kids, my 3 BFFs and their families, a friend with her son from school...if I was really brave I'd invite the two moms I like at school, their sons are autistic. Milo's in the autism program because he shares a lot of traits due to his extreme prematurity. But Milo's very social and is never aggressive. He likes to comfort the kids who are having behaviors- which can get him hurt one day. If Milo could talk he'd say that's the price you pay for being awesome.

Ok, have to go sit out in the rain with everyone for whatever reason they want to...

Love Ms. Crabass

Sunday, July 25, 2010

Test post. Testing. Testing. 1,2,3. 1,2,3, doing the batty bat.
ya HOO
This is me circa late 70's. One of my first dance recitals. It was jazz, but I forget the song. Dancing was my childhood hobby.

So I'm going to try and catch up this blog little by little, with some of the entries of the journal I kept when I became pregnant with the Twinkies in 2002. I might even post from my older journals pre-2002.

The Twinkies are identical twin boys who were born 3 months early. So we have some outstanding and lifelong issues concerning their health and daily functioning. In the words of my third child, my daughter now aged 5, to a total stranger ..."two of my brothers are 7 years-old and they're medical". She also has a third brother, 3 years younger than her. She describes him by saying "...I love him very much. He's always very, very mad and he bites people".

So it's raining here. It's late afternoon and we were headed to the beach for a frolic. But now we're not going. So I can practice writing in my new electronic journal.

I wish I had more time to figure out how to create a decent template for this blog because I do realize it's quite bland. But hey, I have 4 kids. And I think we might be getting a dog soon. I don't know, we'll see. That's a big step and I don't want to be *that* person who gets a dog as a novelty and then ignores him. I love dogs.

So I'm always reading a book. I need it to fall asleep at night. That, and melatonin...sometimes benadryl if I drank any form of caffeine later than 2pm. I used to read only non-fiction, mostly biographies, but now I'm more open to fiction. I prefer gothic fiction, ghost stories and the classics. I can also talk about books, if I feel like it. And I love films: indie, dramas, foreign, comedies, suspense... I have a Netflix account and I'm always up for good movie suggestions. If you want to be my Netflix friend please send me a note. I only have 2 friends on Netflix.

I'm not a writer, but I'll try not to annoy grammer-phobes with incorrect apostrophes and misspellings. But I will be typing quickly and publishing as I do have 4 kids and soon a dog.

Did I mention only one of my kids can talk? Two use sign language. Three can walk. One can swim. One screams and cries a lot. Four scream just for fun. Two look exactly alike. One has green eyes. Four are the cutest. Three and a half are very well-behaved. Two are very laid-back and even-tempered. One craves attention every second of the day. One likes to be alone in a room where no one else is. One is obsessed with Scooby-doo. One loves unicorns and pink. One loves books...loves to tear them to pieces.

I'll see what I can do about posting everyday.

Love Ms. Crabass